2004 Annual Report
(April2004-March2005)
Japan Spinal Cord
Foundation (JSCF)
Activities to Promote Studies on Nerve
Regeneration
The fourth spinal cord reproduction
citizen seminar 2004.10.16 in Shibuya Ward,Tokyo
JSCF@held a
seminar, and 120 people participated. Because enforcement of clinical trial of
"a treatment of the spinal cord injury by transplant of a bone marrow derived
cell" by Kyoto University and a study team of Kansai medical college
became imminent, this was held so that the person concerned talked with a
researcher.
At first Dr. Yoshihisa
Suzuki (Kyoto University assistant professor) introduced a protocol (a clinical
trial enforcement plan) of this clinical trial.
Dr. Masanori Fukushima
(Kyoto University professor, an expert of clinical trial design.) stated when
clinical trial carry out, everyday medical examination and treatment should
have been state of the art, and a close protocol was necessary to carry out
clinical trial.@
Dr.Chizuka Ide (Kyoto
University professor) wanted to make the thing which seemed to be the center
where clinical, there was a series to a treatment, care, rehabilitation not to
mention a study.
ICCP general meeting 2004.10.23 in San
Diego,USA
@
One staff participated
from the JSCF secretariat and talked with an action for these past 1 year of
each group and talked about a future problem.
4th Asia Pacific Symposium on
Neural Regeneration in Toyonaka city ,Osaka
Domestic and foreign
researchers participated more than 100 people, and some researchers gave a lecture.
After the symposium
end, Dr. Hongyun Huang (Beijing / a capital medical college) and Mr.Makoto Ohama
(The chief director of JSCF) talked together, and Mr.Ohama@demanded an
exhibition of study information from Dr. Huang about OEG transplant.
NHKiJapan Broadcasting Corporation. Japanfs sole public
broadcasterj collected data on this state.
At 2005.4.9, NHK
broadcasted a special feature program of a title of "a shock of the
abortion fetal use" based on these coverage and introduced that there was
yes and no two opposing arguments about the use of the fetal cell which
attracted attention in a field of advanced medical care.
Activities to support people of spinal
cord injury
Yomiuri medical care forum 2004.9.5 in
Fuchu city, Tokyo
Yomiuri Shimbun sponsored this forum, and a JSCF supported it, and
it was held. 350 people participated in the person concerned or a family.
Dr. Keiichi Shibazaki (director Murayama medical care center
fielder) explained an outbreak factor and rehabilitation of the spinal cord injury,
a serial flow to a comeback to normal life.
Dr. Masaya Nakamura (A lecturer at Keio University, An orthopedist
of the medical department) talked about his study, the result of having carried
out human neural stem cell transplant to a rat and a monkey of the spinal cord injury,
there was effective in a meaningful level in exercise ability.(See: Iwanami A,
et al. J Neurosci Res.2005 Apr 15;80(2):182-90.)
He told an effect of a treatment and information disclosure about
safety were insufficient as for the treatment that China used OEG which went
for.
Mr Ohama ( The chief
director of JSCF )stated that because a risk was still big about the OEG treatment
that China did, a Japanese patient should have waited for a treatment till we
could confirm safety.
The Yomiuri Simbun is a
newspaper distributed in Japan. The publication number of copies is ten million,
that is the largest in the world.
Publication 2005.2 in guiding it self-management of a person of SCI
February 2005, The
Ministry of Health, Labor and Welfare related group provided US$48,000 to JSCF.
"A self-care guide / How to live with spinal cord injury" ( 144 pages ) was published and 12,000 copies delivered free to domestic patients,
medical institutions and SCI related
groups.
Fact-finding report publication about
abnormal sharp pain with the SCI
The person concerned
who suffered from abnormal sharp pain with the spinal cord injury played a key
role and finished example investigation, count / analysis work of statistics
investigation and published an investigation report in September, 2004. We
dispatched a questionnaire to 6083 spinal cord injury patients and got 1659
answers. As a result, about 66% felt a pain among respondents, and among them
about 40% understood that they suffered from a severe pain.
Regular Activities
Publication (We
distributed 13000 people) of@JSCF news letter.
Phone and E-mail
consultation (120 a year)
Video and DVD loan
service
2004 Financial
Accounting
(April 2004-March 2005)
Japan Spinal@Cord
Foundation@iJSCFj
[Income]@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@@iDescriptionj
\
Grant
Money
@@ 5,130,000
Donations
34.300,000
Miscellaneous income@@@@@ 50,000
@@@Subtotal 39,480,000 @@
(Approx. US 352,500)¦
Amount brought forward 17,020,000
Ground total@@@@@@@@@56,500,000 @@
(Approx. US 504,000)¦
[Expenditures]
Projects@@@@@@@@@@@@8,950,000
Regeneration campaign
lecture
Meeting on respiration,statistical
survey
on pain after SCI, and
rehabilitation equipment
Printing and binding 3,280,000
JSCF Newsletter;JSCF reports
Personnel @@@@@@@@@@@ 580,000
Staff salaries
Rent
@@@@@@@1,980,000 Headquarters
@@@@@@@@@@Subtotal@@14,790,000 @
(Approx. US 132,000)¦
Amount carried forward 41,710,000
@@(Approx. US 372,000)¦
@@@@@@@@@@@@@@¦
1US@\@112.00
2005 Board Members
(April2005-march2006)
Japan Spinal Cord
Foundation (JSCF)
Title Name (male/female) Description
President
@ Makoto
Ohohama(m)
Injured in 1974(C4,5 Quad)
Concurrently
serving as Director of Secretariat
Vice president @ Tuguo Ohokubo(m) Injured in 1985(L2 Para)
In
charge of lobbying activitites
Vice president@@ Tamio Hirose(m) Injured
in
(C5 Para)
Coordinator
for Int .Relations(CIR)
Executive director Nagaoki Shirai(m) Injured in 1994(C6 Para)
Vice –Secretary
General
Executive director@Tooru
Aizawa(m) @ Injured in 2001(C5,6 Para)
@@@@@@@@@@@@@@@@@@@@ Graduate fellow of law school
Executive director Takiko Wakabayashi(f) Non-disabled ioffice-workerj
Executive director@Motoyuki Watanabe() Non-disabled
@@@@@@@@@@@@@@@@@@@@@@ Full-time secretarial staff
Certified social welfare counselor
Auditor
Naonori Kawanabe (m) Non-disabled
Certified Pubulic
Accountant
Auditor@@@@ Akira Tsumaya(m) President of Spinal Cord injuries Japan
